HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
Ugh. Today is the da…
Ugh. Today is the day. Jonah needs to have 4 more baby teeth pulled to make room for his adult teeth. I have only had 4…
“Dad. Jonah has a kn…
“Dad. Jonah has a knife.” The nonchalance in Jonny’s voice led me to believe Jonah had found the butter knife I had…
Jonah is having fun …
Jonah is having fun by freezing his toys in blocks of ice like little proverbial Han Solos. I WILL say the kid is mad…
Kabuki Syndrome can …
Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…
We have come so far …
We have come so far since last year with school. Jonah now LOVES going to school. He used to dread going to school even…
[Some time late last…
[Some time late last night] I’m having a tough time sleeping. Five years ago today (I guess “yesterday” now) we…
Jonah was diagnosed…(video)
Jonah was diagnosed with Autism Dec. 2, 2016. He was completely non-verbal and the diagnosing doctor assigned…
So today marks 5 years… (video)
So today marks 5 years since Jonah was "officially" diagnosed with Autism. I made this video a year after that.…
Five years ago today…
Five years ago today… I still get a little pit in my stomach remembering the anticipation of “diagnosis day.” Wow… how…
“ALL DONE DJ! ALL DO…
“ALL DONE DJ! ALL DONE DJ!!” This morning, Jonah was playing with a car called “DJ” from the Cars movie. He was…
This is the story of…
This is the story of the THIRD time Jonah “eloped” on us. (I have shared the last two experiences in previous posts).…