HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
Jonny was honored an…
Jonny was honored and received an award from the school board for his outstanding character yesterday. I’m so proud of…
I feel like this is …
I feel like this is a momentous occasion that sort of just slipped by without any fanfare. And the number of people and…
Papa and Jojo at chu…
Papa and Jojo at church after the Good Friday service. I can’t take these two anywhere! 🤣
“Daddy, ‘all done sh…
“Daddy, ‘all done sharp hair!’” That’s a new one. On the rare occasion that we are going somewhere remotely “nice” I…
For ANY phone calls,…
For ANY phone calls, I have to find somewhere and hide before I either answer or call out. Jonah will not abide me…
This was the last ti…
This was the last time Jonah eloped on us. It happened in the worst possible place you can imagine as a special needs…
This is the story of…
This is the story of the THIRD time Jonah “eloped” on us. (I have shared the last two experiences in previous posts).…
This is the second o…
This is the second of four times Jonah completely escaped my vision and my care. We were at a busy stadium. Jonah was…
Jonah has escaped my…
Jonah has escaped my vision and care on four separate occasions. (Two of those occasions, I didn’t even know he was…
Jonny receiving ANOT…
Jonny receiving ANOTHER award for his character, because, of course he is… This one presented by the whole school…
I asked him this mor…
I asked him this morning how he was feeling after surgery yesterday and no pain meds since he went to bed last night……
I set up a “sick sta…
I set up a “sick station” for Jonny on our couch complete with a “breakfast in bed” tray to help him recover from his…
Could use some praye…
Could use some prayers, good thoughts and good vibes. Jonny is back in surgery. It’s supposed to be “routine,” but when…
So today I took Jona…
So today I took Jonah to Dave and Busters, which is basically an arcade on steroids. He wandered for about 10 minutes…
Sometimes, it’s good…
Sometimes, it’s good to take a step back and reflect on how far you have come. People ask me how Jonah is doing. My…
