HI, I'M JASON!
I’ve been writing about parenthood and raising two kids with special needs since I became a father in 2008. Jonny has a rare genetic condition called Kabuki syndrome. Jonah was nonverbal when he was diagnosed with autism in 2016. This blog chronicles our family’s journey together, including the challenges, the victories, and everything in between. I share most of my day-to-day thoughts on Facebook, but you’ll find those stories collected here too.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
*revised* Post-Op and Regression
*After reading this initially my sister pointed out that this was pretty negative (I’m tired and generally get whiny…
Jonny’s Surgery
It’s 6:00 Tuesday. Jonny’s surgery got pushed back from 1:00 to 5:00. He has been in surgery almost an hour. Basically…
Jonny’s hips
Jonny went in for his checkup for his hips a couple days ago. He has a ‘bilateral hip click’ or hip dysplasia where the…
Jonny’s first shots
…Were awful. He was soooo happy the whole appointment. He didn’t fuss or cry at all when the doctor was measuring and…
Getting ready for the REAL world
Today Jonny is 8 weeks! old…which also means Mama has only 4 weeks left until we have to get back to the ‘real world.’…
"modeling photos?"
Daddy having fun with the camera… He was more awake for this session so Daddy played around with lighting more……
New Pics & updates
Things are infinitely better since my last post. Things seem so much worse when you are tired and I was plenty of that…
Medical Shenanigans 2
So today we took Jonny to the doctors office. Not the orthopedic specialist (that's on Monday), not the cleft palate…
Meeting the rest of the fam.
Jonny had an absolutely marvelous weekend with his cousins and Auntie S. and Uncle G. He went to the zoo, went to…
Medical Shenanigans..
We are now making appointments to see 5 different specialists for various “abnormalities” regarding Jonny since birth.…
A night with the baby…
Well, we are slowly adjusting to having a baby in our lives. Watching a newborn parenting video, the instructor says,…
Tummy Time!!
Here are a few pics of Jonny getting some tummy time on the boppy. Today he is 8 days old! His neck is as strong as…
