Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Yes. Behavior is als…


Yes. Behavior is also communication. [Love this from Walking With Drake] This is a huge pet peeve of mine. There…

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Jonny’s surgery


We just found out that Jonny's surgery to repair the partial cleft in his soft palate and have tubes inserted in his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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