Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonny made this in 2nd grade…


Jonny made this in 2nd grade. It's been hanging on our wall for several years. I could already tell back then, he would…

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Teachers! We love ge…


Teachers! We love getting these kinds of notes home. Especially when “good things” are happening, but even if…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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