I got around 3 or so…


I got around 3 or so hours of sleep last night. Nothing new in particular for Jojo. Just the usual song and dance...…

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How do you give medi…


How do you give medicine to your Ausome kids? This is currently our situation. Jonny was sent home from school sick on…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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