I had a tougher day …


I had a tougher day today. I didn’t get a whole lot of sleep last night. I had to cancel therapy because I accidentally…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Are you as cool as my baby brother?


We were at one of Jonny's doctor's appointments and they needed to hear him "talking" so they could assess his speech.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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