Five years ago today…


Five years ago today… I still get a little pit in my stomach remembering the anticipation of “diagnosis day.” Wow… how…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Level 3 – Requiring Very Substantial Support


Jonah has been making some big strides in his development in the last few months. He has been able to blow kisses, he's…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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