Jonny without his cast!


Jonny is progressing well with his cast off. He LOVES kicking his legs around again, is much more content to be playing…

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ADVOCACY AND SPECIAL…


ADVOCACY AND SPECIAL NEEDS What advocacy hurdles have you had to overcome? So this summer been very stressful for many…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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