Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

***sigh***…


sigh So Jonah used to be REALLY into Toy Story. I’m glad he’s not anymore. Really glad. Some of you may remember I…

Read More

Celebrate Every Step Forward


We reached this point when Jonny was an infant. He was less than the 3rd percentile for his height and weight for his…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center