Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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This kid……


This kid... Slept all night... ...in his OWN BED! it happens so infrequently (3ish times a year MAYBE) I feel like I…

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Sensory heaven at DE…


Sensory heaven at DEFY #ausome

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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