Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Lisa Lambertus art


Lisa Lambertus is a very talented artist and an Ausome parent. This is a painting she did of her Ausome son. Being both…

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My little trooper….


My little trooper. It’s been a while since we’ve had a lot of medical stuff with Jonny. I’ll take that as a blessing.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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