Today marks 7 years since Jonah was “officially” diagnosed with Autism just after his 3rd birthday.
And with Jonny just receiving his “official” diagnosis of Kabuki Syndrome, it has me in “my feels” a little bit.
Seven years. 😳
It feels so long ago…but at the same time, it feels like we are still in the same phase, parentally-speaking…
We’re still dealing with IEP’s…Still dealing with specialists and therapists. Still dealing with anxiety.
We are still dealing with meltdowns and food aversions; communication limitations and preferred or non-preferred activities.
We’re dealing with making accommodations and making friends; being “okay” when everything is “not okay.”
We’ve spent the last seven years bending over backwards to make things work… hoping to move one step forward; to make ANY sort of progress; pouring thousands of hours of hard work into just “trying to make today a better day than yesterday.”
Seven years worth of “today’s”…
Seven years. But How long is that really?
Seven years ago, I was 35. Jonny was 8. Jonah was 3.
I still feel pretty much the same now as I did back then.
But here’s an eye-opener…
In seven years, it will be 2030. Jonny will be 22. Jonah will be 17. 😳
When I was 17, I was a senior in high school, ready to go off to college.
When I was 22, I was ENGAGED. (I certainly don’t expect THAT for them, but I guess you never know)
Time goes by pretty fast when you’re moving at the speed of life.
“Yesterday,” Jonah turned 3.
Today, I woke up, and he’s now TEN.
I have no idea what to actually expect for my boys’ future. What kind of progress they will make… What kind of care they will require, or how long I will be able to provide it…
Maybe they will find a “special” someone… who will love them for them, who will be willing to take care of them, to have and to hold them in sickness and in health…
That would truly be a God-send…
But honestly, I can’t think that far ahead. “Marriage and kids” and the like.
Heck…I can’t even think as far as next week…
Because we have upcoming appointments with the audiologist, the developmental pediatrician, a well-check to schedule, estate planning to finalize, speech, OT, PT, Key Club, Trail Life, Young Life, the car to winterize, Christmas shopping, holiday planning, and a partridge in a pear tree.
All of those “life worries” will have to wait until tomorrow…
… when I wake up and turn 50.
#ausome