Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonah is happiest wh…


Jonah is happiest when he is simply experiencing life. Whether he is running laps, dumping water, stacking blocks, or…

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Jonah’s Diagnosis – Two Perspectives


Life is hard sometimes. Life is also unfair. That is not an observation. It is a fact. In this life, we will lose loved…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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