Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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I set up a “sick sta…


I set up a “sick station” for Jonny on our couch complete with a “breakfast in bed” tray to help him recover from his…

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Jojobee absolutely WILL NOT wear jeans.


Jojobee absolutely WILL NOT wear jeans. He won't even let us try to get them on him. Ditto for scratchy jerseys!…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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