Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Way to go, Jojo!


A year ago, Jojo had one word he could communicate verbally ("done"). We have been working on imitation for the last…

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This kid……


This kid... Slept all night... ...in his OWN BED! it happens so infrequently (3ish times a year MAYBE) I feel like I…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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