Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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What does your typical Saturday look like?


What does your typical Saturday look like? Ours went a little like this. Breakfast. Bath. Running around outside.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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