Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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“Jojo thirsty.”…


“Jojo thirsty.” I have to take a moment to reflect on our progress for the times when I feel we have plateaued or…

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Something I have lea…


Something I have learned the last few weeks (years). So many times. This journey may seem like a free fall straight…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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