Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Way to go, Jojo!


A year ago, Jojo had one word he could communicate verbally ("done"). We have been working on imitation for the last…

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A Sad Way to Update


I don’t know how to start. Last Friday we said an untimely goodbye to Captain, our indoor kitty of 8 years.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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