A weekend of fun


Last weekend we went to visit the relatives 4 hours away and Jonny had an absolute blast. We ate lots of unhealthy…

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Jonny, my oldest doe…


Jonny, my oldest does not have any specific diagnosis. The geneticist is convinced there IS a genetic component…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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