Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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:( We lost the word …


:( We lost the word "diaper" this week. He had a mastery of it and would repeat it on command if he wanted it changed.…

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“Knowing when to leave.”


“Knowing when to leave.” We don’t usually have this problem with most family events. Jonah loves being with his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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