Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So Jonah is 7 now an…


So Jonah is 7 now and loves to be outside. He won’t wear a mask so we try not to go to places with a lot of other…

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Sitting in the waiti…


Sitting in the waiting room waiting to discuss Jonny’s results. Please send prayers, good thoughts, or good vibes.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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