We went to a “backya…


We went to a “backyard movie night” at our friends’ house. They do this annually, but this is the first year Jonah has…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonah at the ocean (video)


So proud of Jojobee! The first day we came to the beach, he ran straight at the ocean and a wave put him on his back…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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