Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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What is the end goal…


What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…

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So it’s gone. TikTok is gone. …


So it’s gone. TikTok is gone. At least for us. At least for now. I feel sort of… I dunno. “Sad” isn’t really the right…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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