He ate new food in a new location! (video)


We took Jonah to eat at a fancy restaurant. It was attached to our hotel so it wouldn't be too hard to get him out of…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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I was gloriously wrong!


Sometimes I love being proved wrong. Last night, Jonah fell asleep sitting up at about 7:30. Not good. Usually that…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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