Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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Just put Jonah to be…


Just put Jonah to bed... in his bed and he fell asleep within 20 minutes. (Whaaaatt??) 😎 I know a lot of you guys are…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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