So Jonny turned 14 t…


So Jonny turned 14 today. I can’t even begin to describe how proud I am of him. Not just because he is a year older.…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Yes! I’m not some s…


Yes! I’m not some sort of super-parent. I’m just doing what ANY good parent would do in my situation. ...whatever is…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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