Happy 7th Birthday Jonah…


Happy 7th Birthday Jonah. Today, we celebrate you. We love you. We are so proud of you. We are so happy you came into…

Read More

Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

Jonah just had his f…


Jonah just had his first ever music concert! OH MY GOSH you guys. He did SO well!! He was actually SINGING! I have…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center