Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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How do your kids han…


How do your kids handle unexpected stimuli? Doorbells... fireworks... balloons popping? Some of Jonah’s favorite things…

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Jonah learned a new word… (video)


Jonah learned a new word. And I will celebrate it with him. EVERY TIME. The journey from where we started to where we…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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