Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Who is in your “trib…


Who is in your “tribe” that you haven’t actually met? I am truly grateful for every person who follows us down this…

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Happy Halloween ever…


Happy Halloween everyone! Are you or your kids dressing up? I bought Jonah a costume (Dash from the incredibles... I…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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