Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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So, it took about a …


So, it took about a week and a half and plenty of Vaseline/chapstick but I think we finally got him to stop peeling his…

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Here, Jonah is eatin…


Here, Jonah is eating a peanut butter and jelly sandwich. This is special for 2 reasons. 1) Jonah has never had peanut…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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