Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonny is growing up …


Jonny is growing up too fast. Sometimes I forget he’s almost 10. He’s in about the 10th percentile for his height and…

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So proud of you Jojo…


So proud of you Jojobee. The last two meltdowns, you have regained your composure, limited your hitting, caught…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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