Jonny chimes in to say hello… (video)


Jonny chimes in to say hello... Hope you all are having a Happy New Year! Original Facebook Post.

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Hey guys! So we trie…


Hey guys! So we tried a weighted blanket last night for Jojobee and he LOVED it. He even slept from 10-6:30! We got it…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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