Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Yep. In our home as …


Yep. In our home as well! [Love this from A Piece of Oakley] In our home... ❤️💙💛

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Went to the public b…


Went to the public beach today... It went great. After a few hours, Jojo’s swimsuit was pretty wet and started chafing…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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