Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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I got around 3 or so…


I got around 3 or so hours of sleep last night. Nothing new in particular for Jojo. Just the usual song and dance...…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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