Being 2


Time for some updates! We went to the doctors for Jonny's 2-year check up and the biggest news is that...well, it was…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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They were playing so…


They were playing so well together in Jonnys room. It was quiet. It was TOO quiet. 🙄🤦‍♂️

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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