Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

Read More

You guys. Mater is m…


You guys. Mater is missing. “Third Mater,” to be more specific. This is “first Mater.” He’s here. He and Jojo played…

Read More

What is the end goal…


What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center