Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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So Jojo was up at 3a…


So Jojo was up at 3am this morning. He got up, wandered into our room and climbed into bed with us. He has learned that…

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“LOOK WHAT I CAN DO!”


This morning, Jonah came up to me and pulled me toward his dismantled marble run toy. He had "that smile." You know the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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