Jonny got glasses to…


Jonny got glasses today and now he looks like he’s like 17 and I don’t know how I feel about that! 😭😭😭…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Sometimes the stars …


Sometimes the stars align so perfectly in the worst possible way for parents… I am reminded of this memory (Thanks…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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