Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Our future is NOT set in stone.


One thing I have learned on this journey is that our future is NOT set in stone. When we first received Jonah's…

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Today, Jonny is home sick with STREP.


Today, Jonny is home sick with STREP. Jonah has no school. So both boys are home with me and going stir crazy. With…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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