New Pics & update


We are counting down the days until Jonny finally gets his cast off. December 19th at 1:20. T-minus 12 days and his 12…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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We have sort of been…


We have sort of been in “cruise control” for a couple months. We’ve figured out some “doable” routines for Jonah, but…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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