Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Just. Tired.


We are about 2 hours into our bedtime routine. Jonah isn't tired. He's restless, but not melting down. He's roaming his…

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Jonah’s Diagnosis – Two Perspectives


Life is hard sometimes. Life is also unfair. That is not an observation. It is a fact. In this life, we will lose loved…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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