Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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(I wrote this today……


(I wrote this today… based on ACTUAL events) I saw Daddy laying down in bed… Sometimes Daddy lays down in bed and it’s…

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18-mo stats for Jonny


So we had Jonny's 18 month checkup today. We waited about 20 min before the pediatrician saw us and Jonny kept signing…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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