He ate new food in a new location! (video)


We took Jonah to eat at a fancy restaurant. It was attached to our hotel so it wouldn't be too hard to get him out of…

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Why do I do it?


So I’ve been in this for a few months now. When I started this page, my hope was that I could find support from…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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