Our future is NOT set in stone.


One thing I have learned on this journey is that our future is NOT set in stone. When we first received Jonah's…

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How did today go?…


How did today go? Well, Jonny could not stop coughing. He’s got a bit of a cold. Jonah thought it was HILARIOUS every…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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