I’m flying!


I was going to write a lengthy, yet witty blog about our happenings, but it is late already and I am resorting to a…

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Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Do you have someone …


Do you have someone in your life that helps turn a difficult day into a beautiful memory? We spent the day with……

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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