Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Honor Where Honor is Due


This blog is long overdue, but I thought I'd stop and say thank you to everyone who has helped us along the way. THANK…

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[Some time late last…


[Some time late last night] I’m having a tough time sleeping. Five years ago today (I guess “yesterday” now) we…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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