When Jonny was young…


When Jonny was younger, he would say the funniest things. If he didn’t quite have the vocabulary to describe what he…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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“You can do it! Just one more! Keep going!”


“You can do it! Just one more! Keep going!” Yes, I constantly encourage and push you to do more... It’s the reason we…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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