Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So this is our curre…


So this is our current issue with Jonny, who is turning 14 this month. Jonny was born with several medical issues. He…

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Not sure if I should… (video)


Not sure if I should praise him for his creativity or cry for the waste of precious coffee... Happy Monday!…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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