Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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So this is our curre…


So this is our current issue with Jonny, who is turning 14 this month. Jonny was born with several medical issues. He…

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So it’s been a while…


So it’s been a while since I’ve given you any kind of real updates. Yes. we’re still here. We have seen some amazing…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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